Retrospective on Establishing Rare Diseases Medical Service System and Research Platform in China

Retrospective on Establishing Rare Diseases Medical Service System and Research Platform in China

Blog Article

Rare diseases refer to diseases characterized by very low prevalence rate but causing serious public health problem multimatic 255 tig kit in the society.The diagnosis and treatment of the diseases pose great challenges.During the period of 13th Five-Year, China has accelerated the pace in all aspects targeting on policy support and scientific research in the rare diseases and on patients having the diseases.The efforts include establishing the cataglog for rare disease, introducing a series of policies to accelerate the R & D of drugs, upgrading the standardization clear zig zag pet gate of the diagnosis and treatment competences and so forth.In addtion, the establishment of National Rare Diseases Registry System(NRDRS) has been instrumental in knowing the burden of the diseases and enhancing the scientific research to rare diseases.